Journal
Tuesday the 18th of December
Marie-Louise has arrived! On Wednesday the 12th of December, at 12.43h, she was born by Caesarian, weighed 3290 g and meassured 49 cm. Tue and I had been ancious to plan for a 'controlled' birth of the baby, and we had therefore decided to 'take her out' 10 days before she was due. Everything went very well, and all the staff in the operating theatre sang her a birthday song, while working on my stomach. A truly great start of her life!
We returned home from hospital already on Friday, and Marie-Louise seems to like her new home. She is very sweet, not very loud and VERY, VERY hungry. She eats all the time ... We had her tested for Fanconi Anemia in week 12, showing no FA, and we are so happy to have a healthy little sister for Sebastian.
Sebastian is - so far - very fond of his new little sister. He calls her 'Rie-Louise', asks to sit with her and loves to give her the dummy (he is probably a little envious!). In the days up to the birth, I think that he sensed that something were to happen - only he did not know exactly what it was. He started to become a little fussy in kindergarten, and one night, as my parents were about to leave our flat after visiting, he told them very frankly: please take the pram with you, will you? We will see how things go - for now we just try to involve him in every sense.
Christmas is coming up and Sebastian has started to become very interested in what he should wish from Santa Claus. The list is getting longer for every day passing! Santa showed up in kindergarten the other day, and althoug Sebastian is still very scared of him, he managed this year to go up to him and offer him some money. A rather smart move, if you want something in return ;-)
Saturday the 24th of November 2007
More than two months without internet connection - and therefore no updates! We have moved from the house, had to live temporarily for three weeks in a flat until we finally were able to move into our new place. The telecom company let us down for several weeks, and we have finally chosen another company for the internet access. Being back online feels great!
We were so lucky that the take over of the house and the actual move took place in October. I have grown really big, and had the move been a month later, the pregnancy would no doubt have been a major obstacle. It has indeed been an effort to move from the house, and not least to pack and unpack all our stuff. But things have now settled a bit, and we are very happy for the flat that we have now moved into. It lies in an area with a large park and other green, open spaces, and the flat itself has great views. Sebastian is very pleased as well, as he has got more room to play on and a whole room just for his toys. However, when we tell him that he will soon have to share the 'toy-room' with his soon to arrive little sister, Marie-Louise, he does not seem convinced at all ;-)
Last week we went to see Sebastians hematologist, for the half-yearly check-up. The CBC was within normal ranges, and last months visit at the growth clinic showed positive results as well: the growth hormone treatment seems to work very well on Sebastian, so far without any major side-effects. He actually gains both height and weight, which we have been told is rather rare. When you 'strecht' a child with growth hormone treatment, the child will usually not be able to keep the weight-curve. However, Sebastian has gained more in weight than in height which is great news. He is still a small boy (13,5 kg and 94 cm tall), with delicate features, but now we see development which indeed is preferable to the no-growth we witnessed from he was 6-24 months old.
We had a long talk with the hematologist on the question of a possible future donor for Sebastian. Fortunately this is not an question we need to find answers for right now, but with FA it is definately a good idea to have a plan of what to do 'when and if'. At the hospital they have now assesed Sebastians HLA-type, to get an idea of whether his type seems 'normal' or 'anormal'. Unfortunately Sebastians HLA type seems to be 'anormal', which could make it very difficult to find an unrelated donor in the donor registry. Along with this news we are therefore trying to push for another consultation with the geneticists, with whom we would like to discuss the possibilities of PGD (ægsortering) again. Not that the chances of success are great, because they are not :-(, but we could at least try it out.
We are looking so much forward to our new little baby-girl, who will be born on the 12th of December. Amazing how fast time passes - we are getting very close now. We have settled for a cesarean - not least because we are not ready for any surprises this time. We want a controlled and planned birth, and after having taken the decision we both feel very calm and relaxed about it all. We both need to be able to get through another birth experience, although we know that part of the stress which we experienced during the first weeks with Sebastian unavoidedly will turn up again. In our point of view the best way to handle this, will be to try to control the situation as much as we possibly can.
Sebastian is doing great - not only with perfect blood counts - but over all. He has started to say the most funny things, and we often roll over laughing! A few examples:
In Sebastians kindergarten they usually go for a nap at mid-day. One of the grown ups 'sleep' the kids in - which usually takes quite a lot of patience. One day Sebastian asks Stine (one of the grown ups) whether she is married. "No" is the answer. "My mother is married" Sebastian carries on. "Then what about your father", Stine wants to know. "No, he is not married" is Sebastians answer! A conversation which has led to other conversations at home, as you can imagine :-)
Another day in the nap-room in kindergarten, he tries to convince Sidsel, another of the grown-ups, to go back playing, and forget about the nap. "Shouldn't we go next-door and play with the toys, Sidsel?". "No, it is time to sleep, Sebastian". A few moments later: "Why don't we go out fishing now, Sidsel?". "Shhss, Sebastian, it is time to sleep". A little later: "Then why don't we make a great party - is that what it takes?". Sidsels starts laughing ...
At the latest hearing test (1½ months ago). Sebastians hearing is tested without his hearing-aid on, in order to find out what his actual hearing loss is. The two very nice women who conduct the test have given him a head-set on, and one of them explains Sebastian that he must say 'now' as soon as he hears a sound. He says "yes, I will do that" and they start the test. Soon after we can all hear that there was a sound in the head-set, but Sebastian does not react promptly. A little too late he suddenly says: "Now, there was a dangerously silent sound" ("Der var en farlig tavs lyd"). Ehhh? Was there a sound or not? After re-testing approximately 10 times with the same nonsense answer "now, another dangerously silent sound", we are all in tears from laughing!
I hopefully will be able to update again soon - and will try to post new pictures and movies as well.
Sunday the 9th of September 2007
Finally - an update. I am happy to announce that the Summer has been so packed with wonderful events that there has been absolutely no time for updating the journal.
Sebastian is doing really well, and has only had very few and insignificant infections since March this year. Yeahh, way to go! He is growing at an enormeous speed (16 cm the first 12 months on growth hormones!) and seems overall to take the medication very well. We are all convinced that the hormones have contributed not only to growth but also to general well-being and possibly general development as well. We are very thankful for the good decision, which was finally made last Summer.
The pregnancy is going well. I am already - with almost 4 months to go! - big as a house, but if this is the price for our precious girl expected at Christmas (approximately 22nd of December) I am more than willing to pay!
We spent the Summer partly in the summerhouse in Raageleje, and partly at home at Valdemar Holmers Gade in Copenhagen. We have been on two trips to Legoland, a day at the train museum in Odense, a few times in Tivoli and Copenhagen Zoo, and then been with friends and family. We celebrated Sebastians 3 year birthday and had a grand pirate ship cake (picture in fourth row, 2nd) done for the party in Raageleje. Our new nephew Emil is getting bigger every minute, and we are looking forward to his baptism in the coming weekend. Tues brother Thomas and his Marie got married in July (7/7/07) and we attended their grand wedding and party. In August we went three days to Schwarzwald for Aline and Torstens wedding, a great trip where we caught up with the Cambridge group and enjoyed a couple of sunny days in the South of Germany. Sebastian stayed with Elisabeth and Joergen for a long weekend, and did not even ask for us once! He enjoyed every minute spent with grandmother and grandfather - except maybe the noisy nights!
And believe it or not - we finally managed to sell the house after 13 months on the market! We are moving out by the end of September, and have been VERY lucky to find an appartment for rent, very close by Sebastians kindergarten. The long time plan now is to build a house next to Elisabeth and Joergen, in Birkeroed, approximately 20 km North of Copenhagen. This will take us at least 2-3 years, and in the meantime we will have a nice place to live at Bispebjerg Bakke. The really big bonus of selling now is that we will get the move done before the girl arrives in December.
All in all we feel very lucky for the time being. Sebastian is back in kindergarten after a change-of-weather cold. We have a few doctors appointments in the dairy for the coming months, but hope they will all tell of status quo (growth doctor, hearing aid control, blood counts).
Thursday the 8th of June 2007
Another months gone, and good news to report: We had a test (CVS) done for prenatal diagnosis of the pregnancy, and already the day after, the hospital called us with the result. "We only have half of the answer for you - the result of the gender analysis will not come around until next week. But ... the child you are carying is not affected with FA". I had to sit down on a chair to swallow the news - we are just so fortunate, that we this time seem to be lucky! A little more than a year ago, we decided to end a pregnancy of a little girl, who in week 20 was diagnosed with FA, seemingly with defects worse than in Sebastians case. And last summer, we lost yet another pregnancy, spontanously in the 8th week. So we have been starting to doubt the 'rules' of an autosomal recessive disorder: 25% affected children, and 75% non affected!
Yesterday we found out that it is a little girl that we are expecting. I have had a little suspicion of this all along, as I this time (as well as last year with the other little girl) have had quite my share of nausea. I have heard this from other women, that when you expect a girl, you more often suffer from nausea. But this is probably just womens talk ;-)
Yesterday we went to see Sebastians hematologist, for normal control. CBS was fine and within normal ranges. Great! We had a few points to discuss with the doctors, not least after having been to New York, where we met up with other Fanconi specialists. It is interesting to consult with different doctors on the many and complicated questions regarding FA. The hematologist was very friendly and open minded. We are - naturally - still very keen to dig deeper when it comes to the question of a possible donor for Sebastian, if and when he will need to go to transplant. However, the laboratory are now about - on the basis of the CVS - to see if they can tell the HLA-type of the girl, that we are expecting. She has 25% chance of being a match for Sebastian, which we of course cross our fingers for. We will see.
Sebastian is doing great, and is just the sweetest little boy. He (and we!) loves it when we take him into our bed in the morning. He will just lie there and give out hugs and kisses - and be VERY lazy when one of us finally suggests that we should get up and make some breakfast. We have just told him that he will become a big brother around Christmas (baby due on the 23rd of December!) and he responded by gently patting my stomach and saying: "when she comes, I can kiss her". Sigh!!!
Tuesday the 8th of May 2007
It has been a while since the last update, but we have been very busy since returning home from the USA.
Yesterday was certainly a day to mark in the calender, as my sister Malene gave birth to a cute baby boy in the afternoon. Welcome! He is a very lucky boy as he is going to have a wonderful big sister Anna - and we are all convinced that the three cousins, Sebastian, Anna and the little new one, will have a lot of playtime together ahead of them!
We returned home from the States on the 21st of April. The last couple of days we spent at a B & B called the Inn at Sugar Hollow Farm, a litlle west of Charlottesville. We were placed right there in the Blue Ridge Mountains and made a very nice walk around the area. The next day we went to the Shenandoah National park riding around the most beautiful scenery, going left and right, up and down, and left and right again. I started to feel a little sick in the car, but we made it all the way down again.
The flight back to Copenhagen went fine, except that Sebastian did not sleep much. Neither did Tue and I, and we had a long day ahead of us as we landed in Copenhagen Airport. Tues grandmother Ella died while we were in the States. However sad the news, we talked a lot about her long life - she had turned 90 in December - and agreed that she certainly had made the most of it. On the day we returned back to Denmark we went to her funeral in Åbenrå (the southern part of Denmark), which despite all, turned out to be a great day with the family, where we all had the opportunity to commemorate her life.
On the same day I found out that I am pregnant - which explains the naussea in the car! It is only 7 weeks along, and we will have to test it for fanconi in a months time. Fingers crossed!
Wednesday the 18th of April 2007
We woke up straight in the clouds and in the woods! Sebastian started the day - like many of the other days on this trip - by jumping into his pirate outfit ('mit sørøver udstyrt'). After a nice breakfast we drove down the hill to Charlottesville where we were lucky to find a great playground - made of wood (!). We had a great time playing around and the weather even started to feel a little bit like springtime!
We passed Charlottesville's central fire brigade, and decided to see if anybody was in. We were welcomed by a fireman who was very kind and hospitable, and he let us see and even enter one of the fire engines. This was definately one of Sebastians biggest dreams coming through, but I think that the engine itself was so huge, that he got a little (a lot!) scared and was so shy that he clinged onto Tue very firmly. Well, they managed to sit both in the back and in the front of the engine and the nice fireman even turned on the lights for Sebastian. Thank you for a great visit! Five metres off the grounds Sebastian softened up and waved to the fireman and the engines.
After parking the car we went down the Charlottesville Mall, which is the first pedestrian area we have met, so far, on our trip. It made for a nice and relaxed atmosphere and you can tell that the city is a place for university students: lots of cafés and bookstores.
At the end of the Mall there is a Childrens Discovery Museum, where we ended our tour by playing with all the toys and - not least - sailing on the big pirate ship! We drove home (a little stop at Kroger to buy our lunch and dinner) and made a picnic lunch on the terrase. After that a little nap, and then playing around at the house, a little walk, dinner and time for a goodnight story and bedtime for Sebastian. On our trip Sebastian has started to want to read to himself after the goodnight story. It is amazing to listen to his litlle voice from his bed telling one story after the other, sometimes mixing them a bit up, but still getting a lot of the details from what he has heard.
This morning we packed up the car and drove down towards Charlottesville, hitting a few shopping centres on our way. Not that we needed anything, but it is interesting to watch the American consumer-culture, and to wonder how this country can have so many shopping centres, yet they all look pretty much alike. Well, we ended up in a bookstore and found a great pirates-book, a cup of coffee and a chocolate chip cookie - in other words we found ourselves turned into pretty well-trained consumers after all!
We found a great playground, which even had a bit of sun on it, and Sebastian climped up and down, and down and up for a good while. Then it was lunchtime, and after a quick KFC-tour we drove off to our next place to stay: the Inn at the Sugar Hollow Farm. It is very nice and lies in a valley with a great view of the Blue Ridge Mountains. However, the place is not made for kids, so we are very fortunate to have Sebastian who is not the hanging-in-the-curtains-kind-of-kid! Well, we will see how it all goes the next couple of days.
Monday the 16th of April 2007
There has been a little 'hole' in the updates, due to a very nice visit with Lars, Anne and Niels Sofus in Washington.
Thursday we had dinner in Annapolis, and found a very friendly and nice sushi restaurant, where Sebastian even had a bowl of noodles! We slept in a wonderful king sized bed, and woke up to the most fantastic breakfast: egg, bacon, homebacked bread and muffins, juice, coffee etc. We ate a lot, but had to leave a few pieces, which Sebastian could feed to the dog Boing - both he and the dog were so thrilled!
We were planning to see a bit more of Annapolis in the morning (Friday), but as we drove off through the city we decided to move on to Washington a bit earlier. This could give us a chance to see the National Museum of Natural History on Friday afternoon - a museum that we were sure we wanted to go and see. Friday afternoon could be a bit more quiet than during the weekend - we thought! As we entered we were met by a wall of noise and thousands of visitors. Too bad, because the exhibitions seemed to be great, but due to the crowds and the noise we only stayed for a little hour. We saw some great skelettons of dinosaurs, some fantastic fossils and a little dense exhibition on orchids. Sebastian prefered a stuffed brown bear and a tiny little stuffed mouse.
We passed Capitol Hill and the White House on our way to Lars and Annes house which is in Georgetown. We went to a playground with Lars and shopped for dinner. It was just SO nice after a couple of weeks in hotels to stay in a real home, cooking some nice food and meeting up with old friends. Lars and Anne has a beautiful and charming boy, Niels Sofus, who is 5 months old. Sebastian took a great interest in him - AND his toys!
Saturday we slept in and had a cosy and relaxing morning. We managed to get out of the door with the two boys at about noon, and took a long walk through some great shopping areas in Georgetown. We had a great lunch at Dean & Deluca and spent the afternoon in shop after shop. Entering home we had - yet again - more bags AND a giant pillow globe to carry back to Europe!
Lars had to go to a formal dinner at the Embassy, so Tue cooked a nice seafood dinner for Anne and I. We had a great evening discussing politics, kids and life!
Sunday was rain, rain, rain and rain. After a full - full (both Tue and Lars had gone to the bakery!) breakfast, we therefore decided to make Sunday a mall day, and drove off the the fifth largest 'Tysons Corner' mall in the US. It was indeed large - enormous - and with a crazy, crazy playground at the upper level (see video-clip on the front page of this site). The place was so big that we almost felt a bit constipated and despite the endless number of shops we did not buy much. Something for Sebastian of course, but not much else ;-)
We returned back to Lars and Annes place and Sebastian had a great bath-tup tour before we all enjoyed a lovely dinner and the good company of Lars, Anne and Niels Sofus (who has just started eating squased carrots - see photosection).
Monday morning we packed up and drove off south. We had found a B & B on the internet and knew not more of it than the tempting name: 'The Guesthouse in the Clouds' (you can google the name and see more). It is a wonderful place, just next to the clouds!, a little north of Charlottesville. The last mile was a 27 degree steep uphill. First gear for 10 min. The car was certainly working hard. There is a burned smell from the engine everytime we park the car at the lodge. Due to a great bargin, we have a large lodge on our own, and have just eaten a great homecooked dinner (we have a kitchen!). Tomorrow we are planning to go and see Charlottesville, and will then stay on in our 'clouds lodge' for yet another night.
Thursday the 12th of April 2007
Wednesday morning we first decided to go all the way down to a place called Onancock, a 3-4 hours drive further south. However, not being able to get hold of anyone of the very few B & B's down there, we hesitated and decided to go to a city called Cambridge instead. This was right on the Chesapeake Bay as well. First stop however, was going out to Tilghman Island (half island), a rather deserted area, with a nice little community at the end. Beautiful scenary.
Returning back - and going for Cambridge - we drove to Easton - looking out for a playground. This we did not find, instead we found a very nice toy shop, where Sebastian got very occupied by a Brio train landscape. We tend to use toy shops as playgrounds when thats available. Having seen a few American toy shops so far, this one was definately one of the finest, with some of the toys even made of wood - and not only plactic as in "Toys R Us"! Arriving in Cambridge we were met by a huge playground at the visitor center, where Sebastian turned into a pirate, sailing, yelling and running for a little hour. We then went for lunch but was VERY dissapointed to find the city of Cambridge very run down, with hardly any life and only one slightly decent lunch pizza place. Eating one of their pizzas, which consisted of nothing but fat, fat, fat cheese melted down on chuncks of bacon and a tiny piece of tomato, we found ourselves a bit grounded in this place. It felt like a big, boring hole - and we qucikly decided to move on. Out of Cambridge.
Not knowing much of the area, we drove to a place called Oxford (!). Yet another town off the bay, but quite different from Cambridge. Not much life, but neat and with some very nice houses and a little marina. Right next to the little harbour we found the Oxford Inn, where we stayed for the night. Very friendly people and a nice room - and on the ground floor they were even running a cosy little restaurant, where we had a nice dinner.
This morning we slept in until 9! We packed up and drove off - on the road again! Visiting the US we decided that we had to go to one of those big outlets, we had heard so much about. Just outside Queenstown we drove into 'Prime Outlet', where we sure found shop after shop after shop after shop .Great !.. Starting off with a cup of coffee and a chocolate chip cookie we went shopping - big time! After 6 or 7 stores we were ready for the grand finale: the toy shop. Unfortunately it turned out to be a plactic one, and we ended up buying one little car for Sebastian (from the movie Cars). His choice would have been a sword from Star Wars, with which he 'shot' his way through the whole store. Being a mother-who-will-not-allow-any-guns this is NOT sweet music to my ears. Maybe I ought to listen to Mr. Wise Tue, who claims that the more I ban guns the more Sebastian will want it. Hmmmmmmm - he might be right. Sebastian got a torch yesterday, and even this little device to produce light has been reduced to a killing gun. Boys!
Did we forget to mention that we also had to buy another suitcase! Having been in numerous GAP kids stores, we have runned out of suitcase room already a week ago. With our new red purchase we hope to have enough space for the rest of the trip. Keep dreaming ...
We called up a B& B that we had found on the internet, just outside of Annapolis. They had a room vacant and we drove straight to their place, which turned out to be a little paradise. We got the 'king sized room', which is very nicely decorated. The house faces a little lake, where their dog 'Boing' took us for a little stroll. Sebastian laughed so sweet and hard when Boing went into the water and came back up, shaking itself dry.
This Evening we are going into Annapolis center for dinner and a short walk. When Sebastian wakes up from his nap...
Tuesday the 10th of April 2007
Tue started the day early by picking up our rental car - a grey Grand Marquis with lots of room for our little traveling party. We packed up and headed for the Baltimore & Ohio Railroad Museum, which turned out to be an excellent place - both for kids and for grown ups! They exhibited the most incredible steamengines - one of them 100 foot long! - and had trains in all sizes and from all times. Sebastian was SO happy - he ran into the grand 'remise' and kept on shouting "it's just perfect, it's just perfect". We ended up in the shop bying a little black steam engine toy for him, which he "loves" and has taken with him into bed. Great succes!
We drove off south (it must get a bit warmer the further we get ;-)) and crossed the Bay Bridge by Annapolis. We had booked a hotel in St. Michaels, which is a quiet, very nice marina in the Chesapeake Bay area. We have got the coolest suite right onto the pier - 20 feet off the water. We took a little stroll in the afternoon and discovered road after road of small (in American terminology!) wooden houses, almost all of them with patios and a rocking chair or two. Very neat!
We decided to take our dinner in the room - knowing that this is the place in the whole area with the best view! The menu was crab-cakes and Ceasar salad - yummy!
Monday the 9th of April 2007
We started the day with breakfast at the 'Cloud Club' on the 12th floor of the hotel. It was the all American fry up breakfast - egg, bacon, sausages, pancakes and of course a big bowl (at least 2 litres!) of hot syrup! Well, we fortunately had a choice of fruit as well. The two ladies to our left chose a large BLT (bacon, lettuce and tomato) sandwich - MINUS the L and T. Yep: they buttered two slices of bread and squeezed 10 thick slices of dripping bacon in between. We do not know if they had seconds - we left before!
Off we went to the Baltimore National Aquarium, which was a impressive experience. We saw sharks, crocodiles, rays, parots and lots of other marine animals. Not least the dolphins, which we saw jumping and splashing at a special show. However, Sebastian was more interested in his newly aquired frog handbag and frog binocular. For all of you at Blå Stue, Regnbuen: the picture of the handbag is dedicated to you. Sebastian can hardly wait to go back and flash it in kindergarten!
Seafood in Baltimore is a must - so we went for lobster, clams and mussels for dinner. Sebastian insisted that it was a red grasshopper lying on Tues plate, so we sure need to work a bit on his seafood education!
Sunday the 8th of April 2007
Yesterday we managed to go shopping - a bit. It is definately NOT Sebastians favorite thing, but it helped that we had remembed his 'fishing line' with which he caught one bit shark after the other at the shop. For lunch we went back - as promised - to the Grand Central Oyster bar, where Tue got six grand oysters. I got a creamy clam chowder (soup) which was very good. We took a slow afternoon, with some packing and picking up of laundry, and went out for dinner at the Montana Grill House. Great place with some very yummy steaks. Sebastian preferred the chocolate chip cookie and played around with his pirates.
This morning we went to Central Park. Even though the wind was still cold and fresh, the sun came out to swept the park in Spring sunshine. They had a great new playground ready for Sebastian in the lower part of the park, and he ran, slided, crawled and climbed for a good hour. Then it was time to take a taxi to Penn Station, where we had to queue up in a very slow and long line for our tickets (prebooked from back home - but the ticket machines would not accept the credit card!!!). We made it just in time, grabbed a few sandwiches and boarded the Acela Express towards Baltimore. Sebastian enjoyed the ride and we arrived in Baltimore only a couple of hours after leaving NY.
Baltimore is definately MUCH smaller than Manhatten. We thougt that the hotel where we had booked our room would be quite a walk away from the harbour. Well, we can throw a stone down the water from our window! Great! However, we had to move rooms (hi, Libbe, you are NOT the only one anymore!), as we had been placed next to a very smoking room (even if it is not allowed!) - we had cigarette-smell all over the place, and they have been very nice to move us to another room right away. With a better view of the harbour even! We went to a very good steak restaurant just a few blocks away, and Sebastian was great just playing with his toys, fishing a bit, drinking milk, eating a little snacks and giggling away when 'Politibetjent Madsen' sent him off to prison (a new favorite game).
On Easter Sunday we cannot help but think - with envy - on the family Easter gathering back home, with the lake and the ducks, the eggs, both from the poultry and the ones made of chocolate. Sebastian says "Gæk" "Gæk" to whomever received his letters - by the way. We hope that everone enjoyed the day, and send our Easter greetings to all our friends and family.
Saturday the 7th of April 2007
We have had kind of a bumpy night with Sebastian in our bed. He had a good nights sleep, I guess, but as he has his habbits - lying across, constantly scratching his fellow bed-mates with his toes in his sleep etc. - we slept rather poorly. Sebastian has his own bed, but insisted - in a non discusable way - on being transferred at 1 o'clock at night. Soft parents - grow up!
We had a great day yesterday despite some very cold weather - it snowed again a few times! We started the day by going with the underground to the Staten Island Ferry, at the very south of Manhatten. We had a donout, a coffee and not least a chocolate croissant for Sebastian to warm us up - and were then ready to board the ferry. Sebastian liked the trip, but was not too impressed with the Statue of Liberty - the woman was in his point of view 'just an oldie'! Back on Manhatten we walked through Wall Street and along Ground Zero and reached the lower part of Soho where we stopped for lunch. Sebastian made several friends among the staff, and we had a great meal with a wonderful caramel coffee to finish it up.
We walked a bit around Soho, trying to find a toy shop we had read about. Apparantly it moved somewhere else, but we did find another place, where they had a Brio train set up for their small guests. Just what Sebastian had dreamt about! They had a lot of fantastic toys and books. We couldn't resist buying a NASA space rocket outfit for Sebastian. Which he - sure enough - has refused to wear so far. Patience! We walked to Washington Square Garden where there is a great playground, and Sebastian was busy in the sand, on the slide and on the bridge despite cold and snow. After this, a brief stop by in Greenwich Village, where we went for coffee and chocolate chip muffin - in order to keep off the cold.
Thus warmed up we took a cap to the Roosevelt Island Tram (svævebane), and flew over the East River with a great view of the city. After a little shopping we went for a light dinner and arrived back home at 19.30 - time for bed for Sebastian. We were luckly to find King Kong showing on television, and finished the day off by watching the hairy giant moaning and falling dead off the highest tower in New York.
Thursday the 5th of April 2007 part II
The weather is definately a challenge: walking out of the hotel this morning we were met by SNOW! Well, indeed a fresh start of the day! We went to the Rockefeller University Hospital at the Out Patient Clinic, and were met by the very kind staff. Dr. Arleen Auerbach came to meet us a little later, and we had a good talk and chance to ask a lot of questions regarding the research project. Then Dr. Boulad came by, and we discussed a whole range of issues concerning FA and transplantation. Both doctors were very patient with our many questions, and we got a great deal of very useful information from the consultation. Sebastian was VERY shy and alert throughout the talks, and when we finally came to the blooddraw he gave an example of his hysterically scare of this exercise. So much so that Dr. Auerbach suggested lunch-break after his serious cry out. Great idea! We went for lunch and Sebastian was fine and cheerful quickly after leaving the clinic. We went back an hour later and finished up the paper-work and gave a bloodsample (Tue and I) as well.
The afternoon was used for napping - everyone was exhausted from the visit - and we did not go out again until 6 in the evening. The cold weather shortened the trip and having walked along a windy and very cold 3rd Avenue for a while, without having found any suitable dinner option, we just went back to the hotel and ordered some take-away 'Italian' food. This evening and the coming weeks will most probably be used to mentally evaluate the visit, as the whole FA journey is indeed a complicated and challenging one.
Tomorrow we are going on the Staten Island ferry despite the weather and probably walk around Soho and Greenwich Village. If Sebastian wakes up as early as the past few days, we will be the first in line for the early ferry ;-)
Thursday the 5th of April 2007
Despite the rain and some fairly low temperature (~50 F) we had a great day yesterday. And long! Sebastian was jumping around in the bed at a little past 5AM in the morning, and he managed to get us out of the duvets at 5:43! All time record! We took the underground downtown, and started the day in Macys, where florists had made some fantastic window displays (see pictures in the photo section). Apart from this Macys was not the big adventure, and we quickly decided to move on. Next stop was Toys R Us. The shop is built up around a grand 'pariserhjul' - with a loooooong queue. As Sebastian refused to try it, the queue problem solved itself.
We went through Times square and was starting to feel very cold and wet. Under the Rockefeller Center we found a nice little sushi-bar, and ordered some take away to eat back at the hotel. After the nap we went out again - this time with more appropriate clothes: 'flyverdragt', boots and gloves! We walked down Park Avenue and spotted some very nice shops. The area around Park Avenue, Madison Avenue and Lexington Avenue definately need some more scrutiny and attention... Being a little dissapointed about the Toys R Us shop, we went to the F.A.O. Schwarz toy shop, where they have some gigantic teddy bears and a great selection of toys and kids clothes. We found the coolest rain-coat and boots! For dinner we were luckly to find a small place, where kids were welcome (asking at an Italian restaurant earlier in the day their answer to whether kids were welcome was: 'if they are well-behaved'. Well, a no-go!). Tue got the grand 16 oz. rib eye steak - happy, happy man! Sebastian got some pita-bread - happy, happy boy!
Today is hospital day, and we are looking forward very much to meet Dr. Auerbach and Dr. Boulad. We will post more later.
Tuesday the 3rd of April 2007
It sure is a small world! Walking around on the corner of Fifth Avenue and 34th Street we suddenly bump into our neighbourgs from back home in Copenhagen! What a great surprise! Mette and Steen, and their three kids, are living and working in Chicago for half a year, and had gone to Manhatten for the Easter holidays. We went to have a coffee and it was great to hear their news. The reason why we went to 34th Street was to go up in the Empire State Building, but the queue was WAY too long. Instead we walked up to the Grand Central Station, to see the hall and some trains. Tue spotted the Oyster bar very quickly, and a visit has been scheduled for one of the coming days!
We then walked towards the Rockefeller Center as the queue was much shorter than at Empire State Building (yes, the Rockefeller is not as tall, but sure tall enough for us!). And you have a great view of the Empire State building from the Rockefeller tower. We had a little lunch at the Rockefeller Plaza where Sebastian took a great interest in the ice-skaters. Then a little shopping on Fifth Avenue (kids clothes and toys) before heading home for a nap. We went to Jackson Hole right across the street for a burger and are now fairly stuffed and ready for bed!
Monday the 2nd of April 2007
We have arrived here at Manhatten, all three of us, all our luggage and only 'slightly' tired! Although Copenhagen airport was Easter packed with people we managed to make an unstressfull check-in, even leaving time for a nice cup of coffee with Lotte, who was so sweet to help us out to the airport. Thank you! We strolled around a little in the airport and made it out to the plane. It all seemed a little abstract for Sebastian, looking out on the airplanes, until he finally stood face to face with our vessel. Then he wanted to board strait away, and he was in the best of moods when we found our seats. In the check-in area he had seemed a little tired, and this would play fine into our little master-plan: to get him to nap on the way over - not least to'shorten' the 7 ½ hours of flight. But NO, Mr. Sebastian had no intensions WHAT SO EVER to lay down and relax/sleep. He was jumpy and playful for the whole trip! His hearing aid did not fit the airplane movie-system, and we were greatful that we took his little movie-screen with us on the plane. The batteries ran out at some point however (2½ movies), and we managed to read and play until we finally hit the ground in Newark.
He must have found the trip amazingly fascinating as he even made it through immigration, customs and luggage pickup until he finally fell asleep (Copenhagen time: 21:30) in the arms of Tue in the taxi driving us to our hotel on East 64th Street. We are well installed in a nice, quiet suite with everything we need. We went to the grocery store 'The Food Emporium' right around the corner and bought some fruit, milk, bread and cheese. So we will survive until tomorrow ;-) where we all hope to be a little more up and awake!
Sunday the 1st of April 2007
The bags are packed and we are - more than - ready to go on our US trip! We are leaving tomorrow morning and will hopefully reach New York some time tomorrow afternoon. We are all looking forward, very much, to this trip - not least Sebastian who is insisting to go by space-rocket rather than airplane! We cross our fingers for a safe journey!
Friday we went to the 'growth-doctor' for weight and height control. Sebastian is growing at a very fine speed, and he seems to tolerate the growth hormones well. It has been a great relief to start on the growth treatment, and it seems to have given Sebastian renewed energy and even muscles! In May we are going to look into some bladder-issue, as Sebastian might have a small atresia in his urethra. We hope that it is something harmless, and right now it does not seem to bother him.
Sebastian is very much into pirate-stuff. He dresses up like a dangerous pirate every morning with hat, claw and sword and even changes his voice down into something very dark. Knowing that leaving his pirate-dress behind will NOT be an option, we are planning to pack down his pirate-stuff into the suitcase, hoping that if customs decides to open it, they will not arrest the bunch of us!
We will try to update as often as possible during the coming weeks and wish you all a nice and peaceful Easter.
Friday the 16th of March 2007
Spring has arrived and we are getting hold of the final small details for our New York / Washington trip. Knowing the we are going to a BIG town we went out to buy a light stroller for Sebastian. Just in case that he will refuse this we also bought a carrying sling (Sebastian has the weight of a one year old) where he can sit close to our body, and still make is easy for us to walk around. As anticipated he refused to sit in the stroller AND try the sling! Well, we have to have some serious practise going before leaving on the 2nd of April! Tears and cries - here we come!
Winther is infection time - and Sebastian had to go through a fouth infection this year (now two weeks ago) with stomach pain, vomitting and diarrhoea. It lasted for 10 days, but he seems to be doing fine again and is back in kindergarten.
We are looking very much forward to the US trip and are going to meet up with two doctors in New York, Dr. Arleen Auerbach and Dr. Boulad. We find this a great opportunity to try to find out more about the illness, and hopefully to get a little wiser regarding the prognosis for Sebastian. We will see.
We are going to spend a little week in New York, and will then take the train (!) to Baltimore, where we will stay for a couple of days. After this we will rent a car and drive towards... well we are not really sure. If you have any suggestions of what to do / see in the Maryland / Virginia area you are most welcome to e-mail us (use mail@ with the domain address: lacourmarkerrasmussen.dk). In the weekend of April 14th-15th we are visiting friends in Washington followed by yet another tour into the unknown (!) for four days before leaving back home on the 20th of April. We will of course try to update the journal and the pictures as we go along.
Wednesday the 21st of February 2007
The snow storm has arrived! Everything is white and the wind is howling outside - fortunately I am inside, tucked in a blanket and with a hot cup of coffee! Sebastian is back in kindergarten after yet another week at home, this time with the flu (probably). He ran a high fever for a couple of days, but as his counts, until now, have stayed up, even during infections, we decided that we this time would avoid the trip to hospital for check-up bloodcounts. Of course we cannot do this every time, but this was his third infection this year, and we were happy not to have to go again.
The tickets for our New York / Washington trip have now been booked (2nd - 21st of April), together with a hotel on Manhatten for the first six nights. We are starting to plan the trip more carefully, and got some very nice links and ideas from Anne Marie - Thank you! We might want to stop by Philadelphia and Baltimore on our way to Washington DC, where we are meeting up with friends and from where we are flying back on the 20th of April.
On Sunday we went to a Fastelavns-party ('mardi gras') in our neighbourhood. Sebastian had since Christmas wanted to be a pirate for Fastelavn, which was just perfect as he got a very nice pirate outfit, that he has even played with AND WORN a lot since then (not like the dog outfit, which I bought for him last year. He wore it once, forced by his evil mother, and has turned it down with a frown ever since. And yes, who wants to be a dog in the first place? ...). Then two weeks before Fastelavn, he claimed that he now wanted to be a cowboy - NOT a pirate. Well, as you please master Sebastian! I started working on a horse, found a cowboy hat and wanted to make THE cool cowboy outfit. Well, the horse 'Valdemar' was created and the hat in place (not on Sebastians head of course - he refuses to wear it!), but he went ill and could not make it to the Fastelavns-party at kindergarten. Then for the neighbourhood party we gave him the horse and the hat, as it was outdoor - but NO, dressing up is, apparently, not fun! As we told each other last year: better luck next year!
Tuesday the 6th of February 2007
I do not have the touch of cars! A couple of weeks ago I went to pick up Sebastian in kindergarten, and the drive back went fine until Haraldsgade, the street next to our own (fortunately!). Then the car just went out. Completely. On turning the key just a hoarse 'heumfff'. Hmmmmm ... It turned out that we had run out of fuel ;-)
Today the car was not very speedy, driving a bit slowly and acting oddly. Hmmmmm ... Maybe lack of fuel again I thought. Hopefully I can make it down to kindergarten, to drop off Sebastian. I managed to speed it down to The Rainbow, only to find the back wheel fuming a bit and looking VERY flat. Hmmmmm ... I left the car in front of the kindergarten, and walked back. Hope that Tue will help me out in the afternoon ;-) A bike seems to be a better option for me ...
Sebastian has had another infection, starting with a Sunday (10 days ago) of vomitting. He was not a happy trooper! We went over to hospital, where they found some blood in the urine and a little fever. We stayed the day, and he cleared up. The next week the fever came back and went againg a couple of times and it has now finally disappeared. The night between Saturday and Sunday Sebastian had the worst growing pains that we have ever experienced. He groaned and cried for four hours, and I had unfortunately forgotten the pain killers at home (we were at my parents house for the night). He slept until 10.30 in the morning and woke up in the best of moods and started riding the motor-bike (for kids!) round the house again and again. He probably added another two centimentres that night - those growth hormones sure are effective!
Sebastian is now in kindergarten, which he has started to call 'school'. He asked me 'where is Anna?' this morning, and I told him 'at school'. This sounded very cool (she is 8½ years old and soon to be a big sister ... wow!) so now he also wants to go to school. He took his little bag and called it his school-bag and off he went into kindergarten. When I told him that it was I and not Tue that was going to drive him down to the kindergarten, he insisted that he would drive instead of me. I told him he would need to have a drivers licence, which was fine with him, he said. Coming to think of it: after the drive this morning I might let him and Tue deal with car-matters in the future ...
Wednesday the 17th of January 2007
Sebastian is growing fast in these days - in all respects! He can make us hop and run, and it is often that we find ourselves wearing either the pirate outfit, the Bob the builder outfit or the paper-crown when we sing (meaning Tue or I, as Sebastian - 'naturally' - is the one to play the guitar!) on his command. I am getting suspicious that he has arranged some kind of candid camera ... His speech has developed at great speed over the past six months. A speech-therapist is going to visit him in his kindergarten tomorrow, and I am sure she will be surprised as well. He speeks all the time, and can repeat - and even sometimes understand - long and complicated words and sentences. How he has managed using his BAHA hearing aid I really do not understand. When Tue and I try it on, we need to concentrate a lot to distinguish all the noices that comes into it. However, having had it since he was only six months old, Sebastian has gotten used to it and has 'tuned' his hearing according to it.
Although our winther this year seems very mild - no frost and no snow, so far - Sebastian already got the first infection after only 4 days in kindergarten. A cold, a little fever and a hoarse throath which made him sound like a dragon! He is now back on his feet, but we rest assured that having the pleasure of playing with the 7 other kids in his group in kindergarten has its price. We therefore try to limit his exposure to larger groups of people / children apart from this - without being too 'fanatic' of course.
We can read from Sebastians medical journal that the increased concentration of fetal hemoglobin is at 20% (normal level should be 4%). The doctors tell us not to worry about it - which we try not to do then. Our next appointments at hospital are not until March with a checkup on both growth-factors and his CBC. We hope everything will be fine and steady - and will of course keep you updated.
Thursday the 4th of January 2007
We celebrated a wonderful christmas with family and friends, and jumped into the new year with our fingers crossed for another year of fun and happiness with Sebastian.
After receiving presents both at home and with the kids in kindergarten EVERY DAY of December, and after going through yet another huge pile of wrapped toys on christmas eve, Sebastian finally started to speak of presents from santa with a certain eagerness in his voice. Up until the 24th of December he would keep saying 'afraid' when we mentioned the nice man with the big, white beard and his bag full of presents. This has now changed. We went to Uncle Thomas' birthday on the 1st of January (poor Thomas ...) and Sebastian was very keen to open Thomas' present. In other words: it is now getting really fun to spoil him even more than we have already done!
Through a research project in New York we now have the oppotunity to get more insight on Sebastians FA situation. It takes 'only' a bloodsample so far, which seems easy. However, it turns out that quite a few bloodsamples has been waiting way too long on their way through American customs, and when they finally reached the researchers they were useless. Our hematologist here in Denmark therefore recommended us to take Sebastian to New York for the bloodsample. Therefore we have started planning a trip to New York, probably in April. We will of course use this oppotunity to take some holidays, visit friends and go sightseeing as well. If you have any suggestions for things to do with an almost 3 year old boy in the New York / Washington area you are most welcome to mail your suggestions to us. Use mail@ with the domain address: lacourmarkerrasmussen.dk
Friday the 22nd of December 2006
Sebastian is doing pretty well for the time being. With appetite, good health and growth we find ourselves very lucky and look forward to the christmas holidays. We wish all of you a merry christmas and hope you will share peaceful moments with your loved ones.
Wednesday the 13th of December 2006
We spoke to Sebastians hematologist today and he was not concerned with the increase in the HbF levels. It is quite common in children with FA actually - why this is so science does not yet know for sure.
He told us that he does not use the level of HbF as a meassure of or sign of leukeamia. What is crucial is the CBC-results and so far Sebastian is doing fine. We are of course very relieved.
Tuesday the 12th of December 2006
The last couple of weeks has been busy with various hospital consultations. The visit at the audiologists went well, and Sebastian impressed with his talking. However, the growth hormones have not changed anything in the auditory channels, so we decided to stay on using the BAHA-softband hearing aid, which seems to work well for Sebastian. Last wednesday we started the day at the physiotherapist, who was surprised to see how well the growth hormones have influenced Sebastians motor function. We decided to meet in 5-6 months, where the physiotherapist would perform a formal test on Sebastian and where we could talk more about whether he will need special therapy regarding the hands/thumb. Sebastian charmed his way through and ended the session with a kiss to Ulla (the psysiotherapist) - it seemed to go down well with her ;-). Later that day we saw Sebastians hematologist, who is very pleased with the latest CBC - and so are we!
Friday we went to see the 'Growth' doctor.Sebastian has been followed due to very poor growth since birth (he has been growing at a very slow rate, approx. -4/-4,5 SD). After a couple of very tedious tests of his ability to produce growth factors (which he does not have at all) it was finally decided this spring that he should start on growth hormones. Sebastian (who is soon 2½ years old) has now been treated for four months, and we are all astounded with the results: since 2nd of August Sebastian has grown 8 cm and his weight has gone up as well (from 8,9 kg to 10,3 kg)! On top of this his appetite has increased immensely from almost nothing to now three big meals a day. He has developed muscles and are now ‘firmer’ and stronger.
The growth doctor told us Friday that a biochemist had called her and told her that he had found increased concentrations of fetal hemoglobin in the recent bloodsample (to check the growth factor levels). The growth doctor being a growth doctor did not really know what to do about this information, but we asked her of course to tell this immediately to Sebastians hematologist in case it was a sign of something. We are now waiting for the hemotologist to answer.
Despite this piece of news, we managed to have a lot of fun over the weekend. Especially Sunday where me met up with Malene, Stig and Anna in Tivoli Garden. Sebastian rode his favorite veteran-cars, went on a H. C. Andersen fairy tale trip and helped Tue win at the horse race. No wonder he went to bed a little early Sunday night!
Sunday the 26th of November 2006
What a nice, relaxing weekend we just had. First of all: Sebastian made it the whole week through in kindergarten! Wouw! No infections - great. To celebrate this we went to grandmother Libbe and grandfather Jørgens summerhouse in Rågeleje as soon as Tue was home from work Friday afternoon. Libbe & Jørgen had turned on the heat when we arrived, and we cooked a nice dinner with lamb. Saturday we went to the near-by town Helsinge, where they have this impressive childrens toys and clothes shop called Troldeæsken. Sebastian had a treat in the kids corner with pop-corns, 'pebernødder', and a little playful puppy. Sunday we went to buy this years christmas tree (and a few other necessities for the 24th of December) before we went back to Copenhagen. In the afternoon we went to Tivoli Garden for some kids event, and Sebastian finally got a ride in the veteran-cars. It felt like being a normal family, with a normal need to play, relax and have fun in the weekend. How extraordinary! Speaking of normal: Sebastians appetite has changed dramatically over the past months. This past week he has been crying for food in the evening (at 5 in the afternoon!), he has eaten his breakfast with no complaint and a lot of it too, and he has even been hungry at lunch-time. Those growth hormones really has changed a lot, and the strain of him turning his back on the table again and again has been easing up. It makes everything so much easier - and so much fun. We are looking forward - very much - to seeing the results of the bloodwork made last week, concerning his growth factors. Even we, as his sceptical parents, can see a huge difference, in height, in weight and in appetite.
Wednesday the 15th of November 2006
The rash is still there, but much better and not so itchy. A dermatologist told us yesterday that it is a virus-rash, which you can get after fever and infections. Well, we have seen quite a lot of that for the last three months! Sebastian has been in kindergarden less than 50% of the days since Summer, so we all do hope that he will have less of this in the coming time - with Winther coming up we will see about that. Despite the rash and despite a little cold that has been on for the last 4-5 days, Sebastian has been cheerful as ever.
Especially on Saturday when we had the great family-the-duck-of-Morten-'s-night (the Danish version of Thanksgiving I suppose) at my sisters place - a homemade, vivid family competition on who can cook the best duck. Tue and I found ourselves with a perfectly roast duck, but how to convince the others that this must be the winner? We dressed it up a bit, and arranged it neatly, and surely this did the trick (see pictures in the photo-section). We won the competition this year - and we better, you could say, as Christmas is to be held in our house, with duck as the traditional Danish main course. Sebastian do not eat duck, but going to my sisters place made him run in circles for hours before we were actually going there. My niece, Anna, is THE goodess (not only to Sebastian - she is a very sweet 8 year old princess), not to speak of 'Mene' (my sister Malene), 'Di' (my brother-in-law Stig) and of course 'Misser' (their cat Emil). Sebastian had quite a night running part-time after Anna, part-time after Misser, in a M&M's sugar-rush. We managed to get him to sleep a little before midnight!
Tuesday the 7th of November 2006
Pheww - it turned out that Sebastian did NOT have shingles. Great. What he has must be some kind of a rash. No fever and happy as ever. We will go and see a dermatologist as soon as they have the time. From today he is back in kindergarten - he did not even have the time to say goodbye to me! Saturday we had to go and buy new clothes for Sebastian - those growth hormones really seem to help a lot. He eats much better - although still not very adventerous when it comes to tasting new stuff - and has got three full meal-times a day. We are looking forward to December, where he will be meassured and weighed at hospital. It is such a relief not to have to worry about the food any more. Now we just have to work on plarality on that front in order to avoid him living on ice-cream, chocolate and biscuits (which would most certainly be Sebastians choice!).
Tuesday the 31st of October 2006
Well, just as we thought that Sebastian was back on his feet after the last infection (he made it 5 days in a row in kindergarten this time!) we are now back in the house for some days. In the end of last week we found that Sebastian had a rash on the upper-right side of his chest. We did not think much of it until the weekend when it started to spread a little and get more red-ish. Monday we heard from the kindergarten that another kid had got the chicken pox, but fortunately we had Sebastian vaccinated this Summer. Today - just to make sure - we saw a doctor at the hospital, and she could not rule out that the rash might be shingles. Hmmmmm. Sebastian seems to be fine though, no fever and the rash does not seem to cause him any pain yet. He has been started on zovir-treatment today, and in a couple of days a bloodtest will show us whether it is shingles or not.
Thursday the 26th of October 2006
Finally! We got our new homepage out, and now have the possibility to give you updates on our life with Sebastian here in Copenhagen, Denmark. We still need to make some minor adjustments, but they will come along the road I am sure...
For those of you who do not know us, we are a small family of three: Tue, Kirstine and our son Sebastian, who was born on the 5th of July 2004. At birth Sebastian was missing one thumb while the thumb on the right hand is not working properly. What was much worse was that he was unable to eat due to duodonal atresia, for which he had surgery on day 2 of his life. While recovering from the surgery, Sebastians bloodcounts went down and 3 weeks old he was given a red-cell transfusion, which seemed to stabilise him, and his counts have been fine ever since. The transfusion gave the suspicion of Fanconi Anemia, and a bloodsample confirmed his diagnosis. Apart from the thumb and stomach issues, Sebastian has hearing loss and wears a Baha-softband hearing aid, he has poor bowel movements, and is given lactolosis on a dayly basis, and he is producing no growth hormones, which makes him a very little, but extremely cute, boy. We have started treatment with growth hormones a couple of months ago (2nd of August), and cross our fingers that we will see some growth soon. A mutation analysis has categorised Sebastian as FA-D2, and we are continously trying to get a grib of the significance of this.
Despite all these challenges, Sebastian seems very keen on fighting every one of them! Sebastian is in a special kindergarten (the Rainbow) which is located nearby where we live. In all of Denmark this is the only kindergarten for children with immune-system issues. They can take 8 children from 1 to 6 year, and Sebastian is one of them! We are so thrilled that he can go and play with other children, and have relations with other kids his age. They take special care of the children in the Rainbow, and they have very strickt rules concerning infections - e.i. they never use public transportation when they go on a trip with the kids. On top of all that they are very professional in their work with the children, and try to help them through all the anxiety and insecurity these kids experience in hospital. For the time being Sebastian is in kindergarten from 9 - 15 on weekdays and although he has had quite a few infections since he started there on the 1st of February 2006, we are convinced that Sebastian is gaining from the possibility of playing around with other kids.
Although we - as parents - worry a lot about the future, we have been convinced by our little, happy kid that the best therapy is to spend our time together, to have a lot of fun and to experience Sebastians progress in life. Feel free to have a look in the photo-section and do send us an e-mail (please use mail@ with the domain address: lacourmarkerrasmussen.dk) if you have any questions or just want to say hello.